Action Duchenne

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Duchenne Muscular Dystrophy (DMD) is the most common and severe form of Muscular Dystrophy. It usually affects boys and is diagnosed at around three years of age. It starts in the leg muscles before quickly progressing to other muscle groups. Children with DMD may be in a wheelchair by 8-12 years old and have a limited life expectancy. While people with DMD used to be expected to live only into their teens, thanks to advances in care, most people with DMD survive into their 20s and sometimes longer.

Established in 2001 Action Duchenne prioritises the funding of innovative research into a cure and effective medicines for Duchenne Muscular Dystrophy (DMD).

Our aims are:

  • To fund research into finding a treatment and/or cure for Duchenne Muscular Dystrophy
  • To provide specialist educational projects to support those affected by DMD
  • To campaign for better standards of care for those living with DMD
  • To provide support and information for families and those living with DMD

Action Duchenne takes a positive and proactive approach to the potential new treatments which are now emerging.  Projects funded by Action Duchenne remain at the cutting edge of science and the charity has generated over £5m for new research alone.

Action Duchenne believes that a cure for Duchenne is a global issue and continues to work with international partners to ensure a global cure is found.

If you are signing up for your own place please consider us when choosing which charity to run for, and if you would like one of our guaranteed places, please contact Iain on 020 8556 9955 or email 

If you would like to find out more about Action Duchenne please visit our website